SCDAP.org - Sickle Cell Information

Sickle Cell

Sickle cell disease is a group of inherited red blood cell disorders. It causes symptoms ranging from pain, to organ damage, to anemia. In the United States, sickle cell disease is most prevalent among African Americans, although it can be found in people of all races. About one in 12 African Americans carry the sickle cell trait, which means they are carriers of the disease. In addition, 1 of every 400 African Americans have sickle cell disease. People of Hispanic and Asian descent are also disproportionately affected by the disease.

Sickle Cell Disease Association of the Piedmont (SCDAP) serves the Piedmont region of North Carolina. Our service area includes Alamance, Caswell, Forsyth, Guilford, Randolph and Rockingham counties. We offer our clients the following services in order to improve their quality of life and help them mange their disease.

We Provide:

Newborn Screening: We provide free testing for sickle cell trait and sickle cell disease in our service area

Genetic Counseling: Genetic counseling is provided to individuals with sickle cell disease, sickle cell trait and other related genetic disorders. This service allows our clients to make informed child-bearing decisions

Case Management: Clients participate in a comprehensive case management program. Our case managers and nurses develop all-encompassing plans in order to provide medical services, referrals, education, transportation and even emergency financial assistance in order to ensure the highest quality of life for our clients

Summer Enrichment Camp: SCDAP sponsors a week-long camp every summer for children in North Carolina with sickle cell disease. The camp is designed to foster independence and social skills by allowing campers to participate in a variety of recreational activities in a medically supervised environment

Newsletters

For Health Care Providers or
For Parents of trait Children (English) or
For Parents of trait Children (Spanish) or

Test your Sickle Cell Knowledge